Written on May 18, 2025

A lot has happened since my last update here. I have been updating everyone more through my art posts on instagram and facebook. My specific illness is still unknown. Over the past few months I have been able to do a couple of art festivals with help from friends. The random pains were showing some signs of improvement, but the repeatable pains were on the rise. A consistent daily pattern for a while there was for me to be mostly ok during the first half of each day, while getting some work done, and then I'd become crippled around 4pm and for the remainder of the day. The "crippling" refers to my legs mainly. The tendons in the back of my knees and muscles in the back of my hamstrings, calves and butt would hurt so bad I'd have to spend the evening in bed from that point on. And even then, what ever parts of me that were touching the bed, would still be hurting pretty bad. Then after a few hours of bed rest, I would attempt a shower, hoping that I'd be able to stay standing through it. Sometimes being able to and sometimes not. A few weeks ago I had a brain and full spine MRI done. The only thing that looked abnormal was at the lowest vertebrae at the base of my spine showed narrowed pathways for the nerve roots to exit the spine through. on May 7 my neurologist did an epidural injection in the base of my spine to try and help the situation. That evening the random, full body pains returned and shot up to an extreme level. It was out of control, very painful, scary and frustrating. For the next week the leg pains and the random body pains were pretty bad. Then suddenly I had a few nights in a row where it was all improving. This evening the random pains are still doing their thing but I'm fighting through it. And I'm very grateful that the crippling legs pains are still there but continues to be way down. While writing this I've had some burning, stabbing pains come and go. In places like, my lower abdomen, lower left ribs, backs of both elbows, the outer cartilage of my right ear, my head above my ear, right eye socket bone and more. These pains still do what they have been doing; they come on pretty quick, burn and stab for a minute or ten and then they go away to let new ones start up. This sucks and is very frustrating but I've been able to work through it. I also have not had any let up in the ear ringing since it started 5 months ago. As for what's next... we shall see the doctor said to give the epidural more time to do it's thing. So fingers are crossed on that. Ok the pains are picking up quite a bit now so I'm going to end it here. Thanks for reading. 

​